Brain Matters

We have looked at all the resources available on MSA (multiple system atrophy).  These are the best:

"A brief guide to Multiple System Atrophy"
Written in 2002 by the Sarah Matheson Trust
http://www.msaweb.co.uk/msaguide.htm

"The Physician's Guide to Multiple System Atrophy"
Written in 2003 by the National Organization for Rare Diseases (NORD).  Though written for MDs, this booklet can be understood by caregivers.
http://www.rarediseases.org/programs/mult_sys_atrophy_brochure.html

"Multiple System Atrophy"
Pamphlet published by the NIH in June 2009
http://www.ninds.nih.gov/disorders/msa/multiple_system_atrophy_pamphlet.pdf

NINDS Fact Sheet on MSA
The content is identical to the NIH pamphlet listed above
http://www.ninds.nih.gov/disorders/msa/detail_msa.htm

MSA FAQ (Frequently Asked Questions)
http://shy-drager.org/FAQRetrieve.aspx?ID=36252

"Sophie's Search for a Cure"
This terrific film is about the journey of Sophie and her family.  Sophie, who lived in Novato, California, was diagnosed with MSA during life.  The diagnosis was confirmed upon brain autopsy.  DVDs are available from Rainlight Films.
http://rainlightfilms.com/html/ssfac.html

"Living While Dying"
Blog started in August 2009 by Mary, based in Tampa, Florida, about living with MSA (for 9 years) and a kidney disorder (since birth).
http://mershanti.blogspot.com/

"My MSA Journey"
Blog started in August 2009 by Steve, with MSA.  He will blog about stem cell treatment at the XCell Center in Germany, which will begin mid-September 2009.
http://msajourney.blogspot.com/