Brain Matters

We have looked at all the resources available on PSP (progressive supranuclear palsy).  These are the best:

"PSP: Some Answers"
16-page booklet from CurePSP, published in 2004 (or earlier)
http://www.psp.org/doc_library/1217970611/Some%20Answers.pdf

"A Physician's Guide to PSP: Diagnostic DVD"
Though this DVD was produced by CurePSP for MDs, most of it is understandable to laypeople
https://www.psp.org/materials/ne_dvd_final.html

PSP Outreach and Education Conference 2008
CurePSP recorded its PSP educational conference in Tampa in early 2008
http://www.psp.org/forms/videos.php

NINDS Fact Sheet on PSP
http://www.ninds.nih.gov/disorders/psp/detail_psp.htm

CurePSP brochure featuring Patricia Richardson
https://www.psp.org/materials/fact_sheet_info_brochure.pdf

"A Guide for People Living with PSP & CBD"
155-page booklet from CurePSP, last updated in June 2007.  The best section is "PSP: Some Answers," mentioned above. 
https://www.psp.org/materials/psp_guide.pdf

"Finding Meaning with Charles"
Book by Janet Edmunson, whose husband Charles was diagnosed clinically with PSP but brain autopsy revealed he had CBD.  This book includes positive affirmations for caregivers.

"To Love a Stranger: A Caregiver's Perspective"
Book by Fran McMahon, whose husband Mac had PSP.  This book describes the struggles and joys of the caregiver and patient.

UCSF Memory & Aging Center Overview of PSP
http://memory.ucsf.edu/Education/Disease/psp.html

More Resources:

What is Progressive Supranuclear Palsy?
http://www.ftd-picks.org/frontotemporal-dementias/disorders/psp

PSPInformation
This website was started in 2001 by the late Ron Ritch, a nurse who cared for his wife with PSP.
http://www.pspinformation.com/