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Support GroupsEach support group has its own personality, which can change over time, depending on the group leader and participants. Online support groupshttp://community.lbda.org/forum/http://health.groups.yahoo.com/group/lbdcaregivershttp://health.groups.yahoo.com/group/lbd_caringspouses Local support groups US and Canada: http://www.lbda.org/category/4185/local-support-groups.htmSuggestion: join local Parkinson's Disease support groups and local Alzheimer's Disease support groups, if available and appropriate Telephone Support LBDA Helpline for Caregivers: tollfree phone 800/539-9767 Other online communities LBDA Online Chat Room: http://www.lbda.org/index.cfm?fuseaction=page.display&page_id=55 LBDA on Facebook: http://www.facebook.com/group.php?gid=91235533029 LBDA on LinkedIn: http://www.linkedin.com/groups?gid=1107077 Local Parkinson's Disease support groups Suggestion: join local Parkinson's Disease support groups, if available and appropriate. Two national PD organizations work with local PD support groups: National Parkinson Foundation lists some PD support groups in the US and many ... Lewy Body Dementia | | Saturday, 15 August 2009 | Hits: 342 Read more |
Expert Layperson Resources - MSAAfter you've read the Top Resources, you're ready to move on to more challenging reading: "Clinical outcomes of progressive supranuclear palsy and multiple system atrophy" Brain (2008), 131, 1362-1372. O'Sullivan SS, Massey LA, Williams DR, Silveira-Moriyama L, Kempster PA, Holton JL, Revesz T, Lees AJ. This is one of the most important articles written about MSA. It describes the "clinical outcomes" of 83 pathologically-confirmed cases of MSA.Summary of the articleFull article in PDF (free from the publisher's website)Full article in HTML (free from the publisher's website) emedicine Info on MSA ... Multiple System Atrophy | | Tuesday, 11 August 2009 | Hits: 350 Read more |
Diagnostic Criteria - MSAMultiple System Atrophy - Diagnostic Criteria Adapted from Gilman S, Wenning GK, Low PA, et al. Second Consensus statement on the diagnosis of multiple system atrophy. Neurology. 2008 Aug 26;71(9):670-6. Table 1: Criteria for the diagnosis of probable MSA A sporadic, progressive, adult (>30 y) onset disease characterized by: * Autonomic failure involving urinary incontinence (inability to control the release of urine from the bladder, with erectile dysfunction in males) or an orthostatic decrease of blood pressure within 3 min of standing by at least 30 mm Hg systolic or 15 mm Hg diastolic and * Poorly levodopa-responsive parkinsonism (bradykinesia ... Multiple System Atrophy | | Tuesday, 11 August 2009 | Hits: 447 Read more |
Support Groups - CBD
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Support Groups - MSA
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Emergency Room Info
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Diagnostic Criteria
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Research Update - MS
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Clinical Outcomes -
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